tag:blogger.com,1999:blog-36948242011-07-07T15:20:58.177+01:00A New Rising SunA Blog 4 PRFMr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comBlogger891100tag:blogger.com,1999:blog-3694824.post-1059310846240597582003-07-27T14:00:00.000+01:002003-07-27T14:00:46.060+01:00Dunbloggin!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059309960445722272003-07-27T13:46:00.000+01:002003-07-27T13:46:00.290+01:00Well it looks as if we are going to make it for another year...Thanks to these people for sponsoring me:
Kerry
Lottie
Kippio...Who???
Audrey
Olwen
Jess
Kleinman
Paul
Pete
Jo
Liza
Ryan
Sammy
We made a total of $600 with another 48 hours of canvassing to go!
See you next Year! Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059307276368866242003-07-27T13:01:00.000+01:002003-07-27T13:01:16.206+01:001 hour to go!!!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059307215811984952003-07-27T13:00:00.000+01:002003-07-27T13:00:15.620+01:00I'd just like to apologise for some of the silly meaningless posts posted at this late stage of the Blogathon. We have been having so much fun in the AIM chatroom that most of the time we completely lost track of time! Having said that, apart from a couple of slightly late posts due to unforseen circumstances I think that we will just about do the job.
Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059305586786050912003-07-27T12:33:00.000+01:002003-07-27T12:33:06.710+01:00Meet Jane. She is a musician from Essex and she is organising a charity gig next year for PRF and Make a Wish Foundation.
Thanks Jane!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059303587948531172003-07-27T11:59:00.000+01:002003-07-27T12:01:59.170+01:00I've just found some more famous faces! This is me with the beautiful actress from 'The Bill', Beth Cordingly. Its another photo from the Children of courage awards.Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059300753208688182003-07-27T11:12:00.000+01:002003-07-27T11:12:33.183+01:00Yeeaaa clap hands for Miss HD...she just won a shirt!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059300007236262672003-07-27T11:00:00.000+01:002003-07-27T11:05:40.343+01:00Oops...I nearly forgot...heres last years photos...Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-105929815645805692003-07-27T10:29:00.000+01:002003-07-27T10:29:16.426+01:00This is another short postMr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059296475269899692003-07-27T10:01:00.000+01:002003-07-27T10:01:15.086+01:00Heres the first job of the day after last nights monsoon!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059294259823866242003-07-27T09:24:00.000+01:002003-07-27T09:24:19.776+01:00Remember Steps?Heres H with Hayley...Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059292807329267782003-07-27T09:00:00.000+01:002003-07-27T09:00:07.313+01:00I've just realised that I was a bit late with a post because of that quilt thing (see last post!)
Sorry!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059291445783084912003-07-27T08:37:00.000+01:002003-07-27T08:40:32.953+01:00'The Long Night'
I've just had whats left of my brain scrambled by this conversation!
Jolinar33: Hello... this is Alhena from Bacblog
markandkezz: hello!
Jolinar33: I was wondering if you got your quilt piece? I sent it for a second time, not sure if it got through this time....
markandkezz: hold on...i'll see..
markandkezz: yes, got it. sorry, ive had outlook turned off...
Jolinar33: okMr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059289022106109022003-07-27T07:57:00.000+01:002003-07-27T07:57:02.100+01:00I just seen this from x say anyth1ng x...Maximum Temperatures In The Lower To Mid 90s In Combination With Very Humid Air Will Cause Heat Indexes To Climb To Around 100 Degrees During The Afternoon.
Can we have some of that?Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059286772674256202003-07-27T07:19:00.000+01:002003-07-27T07:19:32.656+01:00Its getting Messy!!!
markandkezz: the moth god
x say anyth1ng x: the mothman!
x say anyth1ng x: he's kinda scary though
VioletMoonFairy has entered the room.
x say anyth1ng x: and richard gere associates with him
x say anyth1ng x: ew
eViL PiKaChU 420: and he's so damn cute too
VioletMoonFairy: back all
eViL PiKaChU 420: why does he have to be a weirdo
VioletMoonFairy: who is this?
uogwendolyn: Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059285771379640132003-07-27T07:02:00.000+01:002003-07-27T07:03:53.363+01:00I'm Back...Thanx Jess!
Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059284004456116072003-07-27T06:33:00.000+01:002003-07-27T06:34:06.506+01:00So hola. It's me, Jessica. I'm pretty depressed. I miss my site. It's brand new. I'm pissed.So, my back hurts. I'm cranky because of my site. I'm out of coffee. And: I am starting to get tired. But only seven and a half hours to go. I know I can do it. I wish Dave was up. I could have someone to talk to and play cards with. Someone real to interact with. I need it right about now. Pep talk. EPnoreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059281719936481122003-07-27T05:55:00.000+01:002003-07-27T05:55:19.930+01:00Its light here now and I think I hear movement from the kids room....Oh No!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059280699090026442003-07-27T05:38:00.000+01:002003-07-27T05:38:18.983+01:00This is a photo of all of us and chat show host Tricia Goddard just before we went on her show last year.Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059279152740331052003-07-27T05:12:00.000+01:002003-07-27T05:12:32.723+01:00Its starting to get light here and the sky looks about the same as it did yesterday...dammit.
Just when I could do with a bit of sun and blue skies, we get another typical English summer day. Still, I've got to spare a thought for all the bloggers that are just starting the night shift!
Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059278215413818282003-07-27T04:56:00.000+01:002003-07-27T04:58:04.410+01:00I really can't believe the shitty weather that we've had here in the last 48 hours. We had about 4 weeks with temperatures up in the 90's and it looked good for the kids and the bouncy castle and stuff.
The forecast (bastards) said it would be showers... there were showers alright, the only trouble is they were all joined together!
Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059275840088182592003-07-27T04:17:00.000+01:002003-07-27T04:17:20.050+01:00This is Kerry enjoying a moment with Craig Fairbrass, dirty Dan Sullivan from Eastenders and co-star with Sylvester Stallone in the movie blockbuster, Cliffhanger.
The photo was taken at the Dragon Boat Races at Bewl Water, Kent.Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059274549692213572003-07-27T03:55:00.000+01:002003-07-27T03:57:57.253+01:00Yeeeaaa...We made the front page!...
Blogathon 2003: "Saturday, July 26, 2003
It's always interesting when someone's blogging for a cause that's close to their heart. Whether it's because they're directly affected by a disease or know someone who is/was, the Blogathon takes on a new meaning for these participants.
Two bloggers that fit that description this year are Mark and Jeanette. Mark's Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059272825856489862003-07-27T03:27:00.000+01:002003-07-27T03:27:05.840+01:00Whats on your monitor? I got bugs!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059271250750553972003-07-27T03:00:00.000+01:002003-07-27T03:01:42.193+01:00Here's one of the few photos that Hayley's taken. It Kerry with The Bill actor Graham Cole. Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059269183908965192003-07-27T02:26:00.000+01:002003-07-27T02:26:23.896+01:00This is a short post!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059267580091487112003-07-27T01:59:00.000+01:002003-07-27T02:00:54.673+01:00The grand totals just hit $80000 Yeeeaaaaa!!!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059265097133360482003-07-27T01:18:00.000+01:002003-07-27T01:19:31.776+01:00We certainly wouldn't have met all of these celebrities without Hayley. Here's Hayley and Pops (Hayleys Grandad, on the right) posing with Norman Wisdom.Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059263353409413422003-07-27T00:49:00.000+01:002003-07-27T00:49:13.383+01:00We just don't know how long she is going to be able to run around like a nutter so we have got to pack as much into her life as we can.
The Sunshine Foundation Progeria Reunions are one of the events that we look forward to each year. Its one of the few times that we can get together with other families that really do know what is happening.
As some you already know we were not officially Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059262108179820092003-07-27T00:28:00.000+01:002003-07-27T00:28:28.170+01:00A lot of people ask us how we cope with Progeria. To me, its a bit of a strange question because we try and lead our lives as normally as possible but then when I stop and think about it I suppose it effects us quite a bit. We have been to the US twice already this year and we have got a trip to Los Angeles and Florida before the end of the year and we certainly wouldn't have done that if Hayley Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059260221350542582003-07-26T23:57:00.000+01:002003-07-26T23:57:01.343+01:00Anyone feeling sleepy?...this should help! Its Oceana -May, Jane & Terry's daughter and she looks as if she's had enough!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059258017438665352003-07-26T23:20:00.000+01:002003-07-26T23:20:17.410+01:00Heres me and Ross KempMr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059255896295648482003-07-26T22:44:00.000+01:002003-07-26T22:44:56.176+01:00Thanks for that little gem, Jess!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059254992869548972003-07-26T22:29:00.000+01:002003-07-26T22:32:00.063+01:00I couldn't resist either!
Staying Up On The Internet Finally Has a Cause
"markandkezz: yo!
eViL PiKaChU 420: yo!
markandkezz: hows in hanging?
markandkezz: it even!
eViL PiKaChU 420: it's hangin a little to the left today
markandkezz: heh heh"Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059254077584424142003-07-26T22:14:00.000+01:002003-07-26T22:14:37.580+01:00We just had to pump a blow-up mattress up in side our car cos its raining so much...only trouble is we couldn't get it out of the car when it was up!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059252293122325072003-07-26T21:44:00.000+01:002003-07-26T21:44:52.973+01:00I'm gonna post a funny story about a blow-up mattress shortly...Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059251199400373882003-07-26T21:26:00.000+01:002003-07-26T21:26:39.320+01:00Heres another famous face. This time it's Kerry and Hayley with the singer Billie PiperMr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059248778746710432003-07-26T20:46:00.000+01:002003-07-26T20:46:18.586+01:00Garden Update... A typical english summers day!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059247699358209162003-07-26T20:28:00.000+01:002003-07-26T20:29:36.503+01:00Talking too much in the chatroom and nearly forgot to post so here's a link to one of my favourite sites....SandlotScience.comMr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059245755501310612003-07-26T19:55:00.000+01:002003-07-26T19:58:21.133+01:00FF (famous face) time! Here's a pic of Hayley and Kerry with the former super-middleweight champion of the world, Chris Eubank
This is another photo taken at the Children of Courage Awards.Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059242702738603692003-07-26T19:05:00.000+01:002003-07-26T19:05:02.663+01:00Its stopped raining here so we're gonna put the tent up for the kids....pic to follow.....Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059241511409591502003-07-26T18:45:00.000+01:002003-07-26T18:46:49.860+01:00oops forgot his Bio!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059239995185672972003-07-26T18:19:00.000+01:002003-07-26T18:21:19.840+01:00Another famous face here!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059238176345047962003-07-26T17:49:00.000+01:002003-07-26T17:54:53.950+01:00Just in case you are wondering who Jane is, here's a photo of her posting that last entry! Jane is my wife and thats Terry, her fella next to her!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059237007707862482003-07-26T17:30:00.000+01:002003-07-26T17:30:07.636+01:00hello to the world its pouring with rain and there is hundreds of wet people in the house . posted by jane oMr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059235728994088792003-07-26T17:08:00.000+01:002003-07-26T17:15:24.333+01:00Famous Face time again!
This is a photo taken in 10 Downing Street with Mr. & Mrs Blair shortly before the Children of Courage awards.
Here's his Bio.....Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059233757295991202003-07-26T16:35:00.000+01:002003-07-26T16:35:57.190+01:00Just found this on Marfan Blog:
"warm sun on my chest
why do people stare, am i
a beauty or beast
in the warmth of love
i let my scars be touched
and they gently fade
thin fingers, sculpture
resting on the steering wheel
i admire the form"Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059232179270661502003-07-26T16:09:00.000+01:002003-07-26T17:58:39.280+01:00Barbeque's alight!...as well as the neighbours fence!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059230623576716222003-07-26T15:43:00.000+01:002003-07-26T15:43:43.446+01:00Head count is up to 25 right now...
Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059229672276952212003-07-26T15:27:00.000+01:002003-07-26T15:29:14.303+01:00Time for another famous face...this is one of my favourites. Its a photo of Louis with Kylie Minogue. This was taken when she [Kylie] invited us up to London last year the day before her US tour. Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059228714276133382003-07-26T15:11:00.000+01:002003-07-26T15:14:00.043+01:00All this talk about Beer is making me thirsty!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059227564383242182003-07-26T14:52:00.000+01:002003-07-26T14:54:43.950+01:00...and heres what the BIG KIDS are up to....!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059226747969308272003-07-26T14:39:00.000+01:002003-07-26T14:42:18.250+01:00I'm resurrecting the Garden Update feature from last years Blogathon! Heres what going on at the moment!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059225487536972872003-07-26T14:18:00.000+01:002003-07-27T22:48:24.920+01:00As promised, I am going to post some photos of my crew with some famous faces and the first one is probably the most famous of them all...Mickey Mouse! This was taken at Epcot during last years Progeria Reunion.Click here to see his unofficial biography...Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1059224676586136722003-07-26T14:04:00.000+01:002003-07-26T14:04:36.556+01:00Yeeeeeaaaaaaaa.....let do it!!!!!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1058391573497828722003-07-16T22:39:00.000+01:002003-07-24T23:08:05.230+01:00Hi to all of the people from the South East of England and in particular, Bexhill on Sea. If anyone comes here and doesn't sponsor me, Hayley has this message... Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1057255278007889932003-07-03T19:01:00.000+01:002003-07-19T10:43:40.056+01:00Well, it's that time of year again... the 2003 Blogathon! will start on Saturday, July 26th at 2pm British Summer Time and run for 24 hours, until July 27th at 2pm BST...and if last year is anything to go by, well into the next night too!
My name is Mark & I live in Bexhill on Sea, in England. My daughter, Hayley suffers from the genetic disorder 'Progeria'.
Progeria is a disease that makes herMr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-1056847896506715912003-06-29T01:51:00.000+01:002003-07-19T10:44:00.293+01:00Progeria Reunion Gallery Posted!! Full report coming soon!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-954425102003-06-09T01:33:00.000+01:002003-07-19T10:44:14.780+01:00This is interesting...Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-948039032003-05-23T22:47:00.000+01:002003-07-19T10:45:21.463+01:00Homelands tomorrow!
Bring it on!
Bong members attending...me, Kez, Tez, Jane, Bastard and new junior member, Chris.
Where's Lee?
Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-929097202003-04-20T01:35:00.000+01:002003-04-20T01:35:01.826+01:00 Gene find offers hope for children who die of old age
By Roger Highfield, Science Editor
(Filed: 19/04/2003)
The cause of a rare disease that makes children age up to 10 times faster than normal has been tracked down to a single "spelling mistake" in their genetic code.
The substitution of a single genetic letter in a gene appears to cause Hutchinson-Gilford progeria syndrome (HGPS), which Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-920404312003-04-05T15:30:00.000+01:002003-04-05T15:30:07.076+01:0080987841
Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-919390942003-04-03T22:48:00.000+01:002003-04-03T22:48:47.700+01:00Hi Mr Okines,
I'm not sure if this is the right way to E-mail....but anyway...it cant help to try......
I saw the Channel 5 documentary and was very very moved about every minute of it.
last night made me completely change what I wanted to be in the future......I'm studying Biomedical Science at the moment.....but as of september I will be moving to Genetics with the hope of still becoming a Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-919389842003-04-03T22:47:00.000+01:002003-04-03T22:47:05.246+01:00I've just watched the programme on television and I am touched. I had never heard of progeria before and it truly touched my heart. Since I have no experience of children with disabilities or rare illnesses I cannot really relate to how life must be for you. I'm not assuming that your life is easy or difficult, but I just wanted to send a message to say that I am thinking of you.
I will keep my Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-919389422003-04-03T22:46:00.000+01:002003-04-03T22:46:27.216+01:00Hi Hayley
I hope you and your family are well.
I have just seen your programme on the TV. As a consequence, I have once again looked up your web page. I have seen a number of TV programmes over the years on Progeria and am much interested in all you special children.
Having looked at your web page I was shocked to see that the Sunshine Foundation have not invited your family over to the Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-919388872003-04-03T22:45:00.000+01:002003-04-03T22:45:11.670+01:00I just watched the documentary on channel 5 called 'Extraordinary People - The Child Who's Older Than Her Mother' and I felt compelled to e-mail.
I had never heard of progeria before and watching it I was moved to tears at the bravioury of the parents of all the children.
You have a beautiful little girl who was a joy to behold. I sincerely hope Hayley enjoyed Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-919388292003-04-03T22:44:00.000+01:002003-04-03T22:44:05.653+01:00Hi
I have just watched the programme shown on Five this evening. I don't normally write to anybody about anything I see on television, but I am so touched and somewhat overwhelmed by Hayley's story I felt that I had to write.
I myself have two children, a boy called Connor who is 6 and a girl called Imogen who is 2 and 3 in June. I find it hard sometimes to be a parent, especially as my sonMr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-907377972003-03-15T00:08:00.000Z2003-07-19T10:45:46.216+01:00Germany Gallery Re postedMr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-905535322003-03-12T00:25:00.000Z2003-07-19T10:46:08.936+01:00I feel a Blogathon coming on!...Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-887886402003-02-09T06:38:00.000Z2003-07-19T10:46:39.786+01:00Archers Other winners included Hayley Okines, four, of Bexhill, who suffers from a condition which means her body ages eight times faster than it should.
On meeting the Prince of Wales the youngster asked for his autograph and scribbled out her own signature, handing it to him in return for his gesture.Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-872876582003-01-12T02:54:00.000Z2003-07-19T10:47:14.650+01:00TheSpark.com's Stress Test! You have it easy. You exhibit a stress percentage of
27%
which is well below average. Quite likely, you are lazy and retarded.Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-849696282002-11-23T15:01:00.000Z2002-11-23T15:01:17.420Z ...and the Lord spake, saying
"First shalt thou open thy parachute,
When thou seekest to land thyself
then shalt thou do three hook turns,
no more, no less.
Three shall be the number of hook turns thou shalt do,
and the number of the hook turns shall be three.
Four hook turns shalt thou not do, neither hook turn thou twice,
excepting that thou then proceed to three hook turns.
Five hook Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-849456202002-11-22T22:58:00.000Z2003-07-05T00:56:15.300+01:00A skydiver returned home late one evening. His wife was quite upset and demanded to know why he was so late. He explained what had happened to him on the way home from the drop zone:
"I was driving home and saw a car stopped beside the highway. A woman was out trying to change a tyre, so I stopped to help. Her spare tyre wasn't in very good shape, and I wanted to make sure she got home OK, so I Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-849398842002-11-22T20:40:00.000Z2003-07-19T10:47:35.043+01:00Skydive! Archive If riding in an airplane is flying, then riding in a boat is swimming. If you want to experience the element, get out of the vehicle.Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-847825692002-11-19T22:15:00.000Z2003-07-19T10:48:03.393+01:00SciZone at the Ontario Science CentreMr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-840816762002-11-05T22:24:00.000Z2003-07-19T10:48:20.473+01:00YOU KNOW YOU'RE A SKYDIVER WHEN...Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-838993382002-11-02T00:58:00.000Z2003-07-19T10:48:48.383+01:00Airwaves International Skydiving SchoolUntitled DocumentMr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-838992922002-11-02T00:57:00.000Z2003-07-19T10:49:03.760+01:00Canopy SkillsMr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-838991922002-11-02T00:54:00.000Z2003-07-19T10:49:22.840+01:00Airwaves International Skydiving SchoolUntitled Document Chris Lynch, ex team member on Sebastian XL and Airtime, British 4 way FS champions for 10 years. Chris has over 7500 skydives and considered to be one of the best all round skydivers in the world. He is rated in Tandem, AFF and a first class formation skydiving and free fly coach. Chris Lynch, ex team member on Sebastian XL and Airtime, Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-838964112002-11-01T23:30:00.000Z2003-07-19T10:49:41.173+01:00More Brighton...& why not!
Luv it!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-838955422002-11-01T23:06:00.000Z2002-11-01T23:06:20.473Z The correct statistics pertaining to the Big Beach Boutique event are now available.
It has been confirmed that there were no fatalities arising from the event.
After several false reports, the organisers of Big Beach Boutique are keen to clarify the events of Saturday night. The emergency services and relevant authorities have made the following information available:
1) Contrary to the Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-838954602002-11-01T23:03:00.000Z2003-07-19T10:52:37.963+01:00Big Beach Boutique II (Southern Fried) Now, if you weren't one of the 250,000 people who made it down to Brighton Beach last summer then you may be wondering what all the fuss was about.Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-835320662002-10-26T01:17:00.000+01:002003-07-19T10:51:37.720+01:00A Slight Return The aircraft will climb to height and then circle the drop zone. Each time it circles one of you will jump and experience a unique combination of excitement and fear enhanced by the noise of the aircraft and buffeting of the slipstream. The world will seem a very confusing place for a matter of moments as you fall away from the aircraft then the parachute will be pulled open Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-834813992002-10-24T23:15:00.000+01:002003-07-19T10:51:17.796+01:00BBC - EastEnders - Nita Mistry BiographyMr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-834810922002-10-24T23:08:00.000+01:002003-07-19T10:50:58.010+01:00BBC - Eastenders - Feedback If you would like a cast member to attend a charity event, please get in touch with their agent. Agents for cast members can be found in the Spotlight book which is available in most public libraries.Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-833774382002-10-23T01:19:00.000+01:002003-07-19T10:50:33.946+01:00Hayleys Progeria Page Look out for a special announcement about the 2003 Progeria Reunion...
Coming Soon!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-803370962002-08-16T23:42:00.000+01:002002-08-16T23:42:17.490+01:00Well...this could be interesting!Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-800954022002-08-11T11:08:00.000+01:002003-07-19T10:50:15.333+01:00Hayleys Progeria PageMr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.comtag:blogger.com,1999:blog-3694824.post-800579412002-08-10T06:46:00.000+01:002002-08-10T06:46:07.980+01:00Mr. Kippiohttp://www.blogger.com/profile/17943466851365986614noreply@blogger.com